The Staffordshire & Stoke-on-Trent Transforming Care programme aims to transform services and support for children, young people and adults with a learning disability, autism or both who display behaviour that challenges, including those with a mental health condition. The partnership comprises professionals from Staffordshire County Council, Stoke-on-Trent City Council, colleagues from NHS Clinical Commissioning Groups and provider services.
We are developing plans to fully involve parents and carers, as well as young people in the development of our plans in the first half of 2018. The lived experience of those who have experienced the system for those with complex needs will be invaluable to us getting this right.
In line with the provisions of both the Children and Families Act 2014 and Care Act 2014, which focus on outcomes, personalisation and wellbeing, the focus will be on strengthening support in the community by building on the provision of preventative approaches that will avoid crises and enable people to be active members of the community, with the aim of avoiding young people being treated in hospital or secure residential establishments unless absolutely necessary.
We aim to improve lifelong outcomes by preventing young people living in long term institutionalised care. We will also look to improve the provision of services for those young people who are returning home following a period of hospitalisation.
Delivery of the Transforming Care programme is overseen by NHS England. The Staffordshire & Stoke-on-Trent TCP Partnership is focussed on meeting the needs of the following groups:
- Children and young people with a learning disability, autism or both who have or are at risk of developing a mental health condition such as anxiety, depression or a psychotic illness and those with personality disorders which may result in them displaying behaviour that challenges.
- Children or young people with an (often severe) learning disability, autism or both who display or are at risk of developing self-injurious or aggressive behaviour, not related to severe mental ill health. Some of whom will have a specific neuro-developmental syndrome and where there may be an increased likelihood of developing behaviour that challenges.
- Children or young people with a learning disability, autism or both who display or are at risk of developing, risky behaviours which may put themselves or others at risk and which could lead to contact with the criminal justice system (this could include things like fire-setting, abusive or aggressive or sexually inappropriate behaviour).
- Children or young people with a learning disability, autism or both, often with lower level support needs and who may not traditionally be known to health and social care services, from disadvantaged backgrounds (e.g. social disadvantage, substance misuse, troubled family backgrounds) who display or are at risk of developing, behaviour that challenges, including behaviours which may lead to contact with the criminal justice system.
In Staffordshire & Stoke-on-Trent we do not see this list as definitive or exclusive and our approach will be to ensure that young people with complex needs associated to a learning disability and/or autism are identified as early as possible and that work across agencies is joined up to meet their needs in order to prevent or reduce additional needs later on.
We will publish further information relating to the programme, and how parents and young people can get involved and inform the above pieces of work in due course.
If you wish to know more about the programme in the meantime, please contact the Transforming Care team on : firstname.lastname@example.org
We have established a working group that meets monthly and which will focus on the delivery of a plan which in due course will:
- Ensure good quality information advice and guidance is available to parents of children and young people with learning disabilities and/or autism about the different types of support available to them locally
- Share (with parents’ consent) information about their child with other relevant professionals with the focus being on meeting needs as early as possible and which allow them to be treated whilst staying at home or within their local community as far as possible
- Develop multi-agency pathways so that professional and parents alike understand what will happen when their child is identified as displaying risk factors or concerns, and when they may involve others in their support and treatment planning
- Detail plans on local provision and identify any gaps so that providers can work with us to develop solutions where we currently do not have specialist provision.