Your Voice Matters: Share Your Views on the Down’s Syndrome Act 2022 Draft Statutory Guidance

Help shape the future of support for people with Down’s syndrome – consultation open until 28 January 2026

This is your chance to make a difference.
The Department of Health and Social Care is inviting feedback on the Down’s Syndrome Act 2022 draft statutory guidance. This guidance will influence how services across health, education, and social care support people with Down’s syndrome – and your input can help ensure it truly meets their needs.

Whether you’re a parent, carer, professional, or someone with lived experience, your views are vital. By taking part in this consultation, you can help shape the final guidance and make sure it reflects what matters most to families and individuals.

The survey is open now and closes at 11:59pm on 28 January 2026. Don’t miss this opportunity to have your say.


Take Part in the Consultation

Complete the survey here: Down Syndrome Act 2022 draft statutory guidance - Department of Health and Social Care


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Published: 1st December 2025