Advice and Support

Here you will find a range of services offering information and guidance that is available to all; parents/carers, young people or professionals. Some are local to Stoke on Trent and others are national groups.

SENDIASS (special educational needs and disabilities information, advice and support service)

If you have a child with special educational needs, trying to get the best advice and help may seem like a confusing and daunting experience. SENDIASS provide confidential, impartial information from education law on disability, health and social care to help parents/carers, children and young people in making informed choices enabling them to play an active role in relation to educational decisions.

SENDIASS can offer support if you have concerns with or without an Education, Health and Care Plan in place for the child or young person. Click here to visit the SENDIASS website.


Local Parent Groups

Parent Engagement Group in Stoke - PEGiS

PEGiS is a chance for parents/carers of children and young people with Special Educational Needs and/or Disability (SEND) and young people with SEND to meet together and informally engage in discussions around educational issues and concerns.

PEGiS meets on the 1st Wednesday of each month and the 3rd Thursday of every month 10-12 at the Hazel Trees In Fenton. Meetings usually last between 1 and 2 hours.

To find out more, contact us by

Telephone: 07935 557 380

or email pegis.stoke@hotmail.com

National Groups

Mencap

Mencap is a UK learning disability charity working with people with learning disabilities and their families and carers. Mencap also provides help and support through supported living, supported employment, respite services, organised activities, systemic and individual advocacy, and outreach support.

The National Autistic Society

The National Autistic Society is here to help the 700,000 autistic people in the UK and their families. Be it running specialist schools, campaigning for improved rights or training companies on being more autism-friendly, the National Autistic Society is dedicated to transforming lives and changing attitudes.

Down Syndrome UK

Down Syndrome UK is a national charity passionate about empowering parents and professionals to improve the lives of those with Down syndrome and their families in the UK.

Our children should be valued and included in the communities in which we live, have the choice to attend their local mainstream school and when old enough to work; not to encounter barriers, but instead to be welcomed and embraced within society.

British Institute of Learning Difficulties (BILD)

BILD helps those supporting people with complex needs – including members, universities, government departments, local authorities, NHS trusts, service providers and mainstream organisations - to champion rights, ensure excellent support and continually improve practice. BILD offers:

  • Workforce development, accreditation and training
  • Organisational development and consultancy
  • Grant-funded projects to support government initiatives
  • Communities of Practice, guidance publications and conferences

Disability Law Service

Disability Law Service offers a National Advice Line that provides specialist legal advice and information for disabled people, their families and carers.

HFT

Hft is one of the largest and longest-established charities supporting people with learning disabilities. Services range from residential care and day opportunities to supported living/domiciliary care at home – from a few hours a week to 24 hours a day. Hft provides support that means people with learning disabilities can experience life to the full – from enjoyment, satisfaction and improved health to finding meaningful relationships or paid employment.

Livability

Livability is the charity that’s committed to enabling people with disabilities to live the life they want to lead. Livability works to change what is unlivable, helping people to tackle the barriers they face and create a livable life. Livability believes that the people they support have the right to a full and flourishing life. They deserve the very best in service delivery. Driven by core values, Livability strives to be open, enabling, inclusive and courageous in all that it does.

Support in the Area
 

Bobo's Barbers, Trent Vale

Bobo's barbers Newcastle are listed as an ASD specialist barbers. They provide specialist SEN appointments for children at a costing of £22.50. You can find out more information at their website

How to contact them:

Telephone: 07444 753 340


Bookstart - free pack for children with additional needs

Bookstart gives free books to every child in England and Wales at two key stages before school, as well as free packs for children with additional needs, tips and guidance on reading together, resources and activities, and much more.

Packs for children with additional needs

Bookstart is for every child, so in England, families are entitled to any of these packs in addition to the two standard Bookstart packs. Please see the Bookstart website page for more information.

Bookshine for children who are deaf

There are two packs: Bookshine Baby (0-2 years old) and Bookshine Toddler (3-4 years old).Each pack has two books, a rhyme place mat (with babies signing) and guidance around sharing books. The toddler pack also includes a bookmark showing British Sign Language.

Booktouch for children who are blind or partially sighted

There are two packs: Booktouch Baby (0-2 years old) and Booktouch Toddler (3-4 years old). Each pack has two touch-and-feel books and guidance around sharing books with blind and partially sighted children.

Bookstart Star for children with conditions affecting their fine motor skills

This pack is available for children aged 3-4 who have disabilities that impact on or delay the development of their fine motor skills. Each pack has a copy of "Off to the Beach!" (an exclusive touch-and-feel book from Child's Play publishers), a board book, a finger puppet for playing along with the story and guidance sheets.

BookTrust has teamed up with publisher Child's Play to create three new tactile books 'Off to the Park!' 'Off to the Beach!' and 'Getting Ready'which you'll find inside the various Bookstart additional needs packs.

Please note that books contained within the packs may differ from those pictured in the gallery.


Brough Park Leisure Centre - Leek

Accessible equipment

  • Swimming pool hoist available. Gradual steps can be put in the pool for access.
  • Disabled toilets and a disabled shower available.

Quiet area available on request.

Training: All management team have done the disability awareness online course provided by Lex Leisure. 

How to contact them:

Telephone 01538 373 603

Website Staffordshire Moorlands - Leisure Services


Green Door Accessible Cycle Hire

Open Monday to Sat, 10:30am - 3:30pm, Cycle Hire Jan-December (weather dependant during Winter Months)

We have a wide range of standard and accessible cycles for hire. This includes handcycles, companion bikes for two, a tandem, the Velo for wheelchair users and trikes (both adult & children's sizes ) for added stability.

We think we have a bike suitable for most adults irrespective of ability level.

We also have a number of bikes suitable for both older & younger children. We will do our best to accommodate younger cyclists – if your feet touch the ground – you can cycle!

We also have the following additional items for hire, children's trailer, children's rear bike seat, dog trailer

We are based at the beautiful Westport Lake, Tunstall.

The cost to hire for an hour is £5 for Adults & £2.50 for children (with a paying adult) carers ride for free.
Booking is advisable due to the popularity of some of our cycles!

How to contact them:

Name: Julian Perks

Telephone: 07824 473 432

E-mail info@green-door.org.uk


NSAAA - The North Staffs Asperger/Autism Association

The NSAAA provides support, help and advice to individuals with an Autistic Spectrum Condition, their parents and carers. They endeavour to raise awareness in the community in a variety of ways. They have a help line, library facilities and offer parent sessions throughout the month.

How to contact them:

Email: info@nsaaa.co.uk

Telephone: 01782 627 002

Monday and Thursday 10 a.m – 2.00 p.m.

Tuesday and Friday 10 a.m – 2 p.m


Our Space

Our Space provide play and recreational activities and facilities for disabled children, young people and adults, and providing support for their families. They are based in Newcastle -under-Lyme. You can find out more information at their Facebook page.

How to contact them:

E-mail: office@ourspacestaffs.org.uk

Telephone: 01782 436 758

Other sources of support:

SENDIOG (the Special Educational Needs and Disabilities Information Organisations Group) is a network of like-minded organisations who provide free and impartial advice to children, young people and their families. They produce a useful information sheet which you can download here.

Contact - the charity for families with disabled children click here to visit the Contact website

Scope - the disability equality charity in England and Wales, providing practical information and emotional support click here to visit the Scope website

Sense - the charity for people who are deafblind or who have complex disabilities click here to visit the Sense website